I was told on Saturday that Jason was coming home on Sunday. I was excited again and began the nesting that I had been putting off for so long. We went in on Sunday, only to be told that he wasn't going home after all. (That was a really hard thing to hear.)
Jason had had a high blood pressure reading, and the doctor on call decided he wanted to find out why. They did ultrasounds on his heart and kidneys, did blood work, and tested his urine. He wasn't showing any symptoms, was eating well, had nothing wrong that they could see but the high blood pressure reading.
Today they got the urine analysis back and it says Jason has a bladder infection. This means that he'll have to have a 10 day course of IV antibiotics in the hospital. No homecoming in the near future for Jason. No stars aligning for us with him.
Needless to say, this has been a difficult turn of events for us. We went from having him home on on the 20th of January to not having him home until February. We had our hopes up and ended up having those hopes crash around us yet again.
You're probably wondering about Shawn. I really have no idea when they'll release Shawn. The only hurdle he has is his bottle feedings. It is a struggle to get him to eat by bottle, and he fusses a lot of the time, especially in the beginning. He will take it, and he wants it, but you must have patience and persistence to get him to finish. I attribute this difficulty to acid reflux. When he eats, a little of the formula and stomach acid slips back up into his esophagus. It burns, and it is painful--hence the fussing.
The problem is that the nurses don't always have the time (or patience) to work Shawn through his entire bottle. Once he starts to fuss, the nurses tend to go for his feeding tube to gavage the rest of his food. So, on paper, Shawn doesn't finish a lot of his bottles. He can (and does when Isaac and I are there to feed him), but he doesn't because when he starts to fuss, they give up on him.
It is a vicious cycle.
I have talked to the doctor about this issue, and he doesn't think that his acid reflux is any worse than that of other babies. I beg to differ, but I can't seem to get them to agree. There is medication to help Shawn deal with this, but again, the doctors are leery of giving it to him.
So, where does that leave us as far as homecoming is concerned? I don't really know exactly. Jason will be on his antibiotics until the start of February. Shawn is still up in the air.
Sometimes it seems like they will never be home. I struggle with the fairness of it all, too. We haven't caught a break at any turn, and it had been a long, hard journey to even get to this point.
Thank you for all of your kind words and support through these long months since their birth and during my less than stellar pregnancy. You all have helped us tremendously. It is nice to know that there are so many people rooting for the boys and for us.